Welcome to Madison's Wish!
Madison was born on October 4, 2006. She was sent home from the hospital with a clean bill of health. At the age of 1 year, Madison was diagnosed with SMA, Type 2. The 2nd worst stage of the #1 genetic killer of children. Due to the deterioration of Madison's muscles, she was never able to crawl or walk. By the age of 2 years old Madison used a power wheelchair for mobility, had a BiPap machine for breathing support during her sleep, suction, Pulse Oximeter, cough assist, nebulizer, and the Vest for lung therapy and respiratory support, feet braces, knee braces, wrist splint, body brace to support her spine, ramps, therapy equipment and more.
After Madison's diagnosis, we knew that we could not stand by and watch Madison wither away or wait around for a cure. In addition to raising funds to help Madison's fight, we founded the S. Fl Chapter of Families of SMA, which funds SMA research and administers programs that support affected families. In 4 years, we have raised over $175,000 for research; hosted meetings for affected families; and have spent countless hours lending emotional support to parents of newly diagnosed babies. Go to www.fsma.org to donate towards finding a cure or treatment, and raise awareness of SMA!
We are always amazed at how Madison continues to fight SMA, live with a huge passion for life and touch so many people. We are making a difference in Madison and the SMA world!
Please take just a minute to sign a petition to Congress for funding to find a cure for Spinal Muscular Atrophy at www.petitiontocuresma.com
Please help us in our mission.
Sincerely, Jen & Aaron
Save the Date!
You are invited to our 5th Annual Madison’s Wish Charity Golf Tournament. Thank you so much for the support of last year’s golf tournament. We look forward to another outstanding event this year.
Register NOW! Click here for the registration form.